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NPTCDI Project Overview

NPTCDI Program Overview

Overview

Northern Plains Tribal Cancer Data Initiative

(NPTCDI)

 

In September 2007, the Aberdeen Area Tribal Chairmen’s Health Board (AATCHB)’s Northern Plains Tribal Epidemiology Center (NPTEC) received a grant from Office of Minority Health, the United States Department of Health and Human Services to implement the Northern Plains Tribal Cancer Data Improvement Initiative (NPTCDI).  This program is researching the cancer disparities among Northern Plains American Indian communities by improving the quality, accessibility, and usability of cancer data.

 

The four goals of this program are:

  1. Develop alliances and partnerships in order to improve the coordination and alignment of cancer data collection, management, dissemination and utilization.
  2. Increase the use of available data to identify high priority cancer health status objectives and services needed to achieve such objectives.
  3. Enhance the current system for more effective cancer data collection, management, and use.
  4. Ensure a sound management of the project.

 

How we implement this program:

·     The Tribal Oversight Committee, comprising of leaders of Native American communities, provides the guidance to ensure that the program is implemented in a way that respects the unique cultural heritage of Northern Plains Native communities. 

·     The Data Workgroup, comprising of representatives from Native American communities and experts on cancer data, provides input on planning and implementation of project activities and gives technical assistance. 

 

Year 1 Accomplishments:

·     Formation of Tribal Oversight Committee and Cancer Data Workgroup

·     Analysis of 10-year Behavioral Risk Factor Surveillance (BRFSS) data to examine patterns and trend of cancer risk factors and screening use among Northern Plains Native Americans

·     Completion of the literature review of cancer data related to Native Americans

·     Creation and maintenance of Cancer Literature Database.

·     Creation of Cancer Data Inventory

·     Development of Cancer Fact Sheets (Community Version)

·     Implementation of Cancer Data Workshop (Cancer Data 101 Part 1&2; GIS 101)

 

Planned Activities for Year 2:

  • Release of a report on BRFSS trend analysis on cancer risk factors and screening use among Northern Plains Native Americans
  • Further development of Cancer Data Inventory
  • Implementation of regional Cancer Care Survey
  • Planning for Cancer Gap Analysis at one pilot site
  • Planning for Cancer Registry Data Analysis
  • Implementation of Cancer Data Workshop (topics to be determined)